VASTox provides grant to support Duchenne Muscular Dystrophy patient registry
VASTox plc has provided a grant to the UK muscular dystrophy charity, Parent Project UK (PPUK), to support the development and management of its Duchenne muscular dystrophy (DMD) patient registry.
The DMD Registry aims to register every person in the UK with DMD and Becker muscular dystrophy, including detailed clinical and genetic data, in a secure, legally protected database that has been endorsed by senior clinicians, health professionals and researchers. It will be used by these groups to help accelerate the development and delivery of new treatments for Duchenne and Becker muscular dystrophies by providing an easier route to clinical trials in the UK.
Ultimately, this registry will be used by VASTox, and other organisations engaged in the development of therapies for muscular dystrophies, to support Phase II and Phase III clinical trials in the UK. The grant will be used by PPUK to recruit a full-time project manager and to help raise awareness of the registry among clinicians, patients and their families.
The resource will also provide information for families of DMD patients, including the latest developments in research for treatments for DMD, which will enable them to make better decisions about their future medical care needs.
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