ALS Association Greater New York Chapter

The ALS Association Greater New York Chapter (ALSAGNY) is a 501(c)(3) nonprofit organization that was established in 1994 as a chapter of The ALS Association that serves New York City, Long Island, Northern and Central New Jersey, Westchester, Rockland and the Hudson Valley. The ALS Association is the only national nonprofit organization dedicated solely to the fight against amyotrophic lateral sclerosis (ALS) – also known as Lou Gehrig’s Disease.^[1]

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Mission

To lead the fight to cure and treat ALS through global, cutting-edge research, and to empower people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support. The ALS Association carries out its mission at the national level and through its nationwide network of chapters and support groups. As one of ALSA's larger chapters, the Greater New York Chapter plays a major role in promoting the mission of ALSA by:^[2]

• Funding aggressive, cutting edge research to find a cure that utilizes the newest techniques and fosters collaborative initiatives among government agencies, the private sector and scientists.
• Providing a comprehensive range of support services for patients and their families in the Greater New York area.
• Heightening awareness of ALS in order to stimulate volunteerism, scientific and healthcare community activism, and public support that is essential to the fight against ALS.
• Supporting ALSA's national advocacy program to expand government support of research and elicit programs to make treatments and care accessible and affordable for all ALS patients.

Patient Services

ALSAGNY aims to enhance the quality of life of patients living with ALS (PALS) through the programs offered to individuals and families affected by the disease. We understand the value of PALS being able to communicate, function safely in their home, and travel to ALS Clinics for comprehensive evaluation and treatment. These programs are designed to meet these essential care needs as well as the emotional needs of patients and caregivers living with ALS. Below is a list of the different services provided:^[3]

• Three multidisciplinary ALS clinics
• Support Groups
• Augmentative Communication Loans
• Durable Medical Equipment Loans
• Educational Symposia
• Home Visits
• Home Modification Visits
• Case Management
• Information and Counseling
• Transportation to Clinics
• Inservice Training for Health Care Providers
• Resource Referrals

Counties Served

The list of counties served by the Greater New York Chapter are listed below:^[4]

New York City

• Bronx County
• Kings County
• New York County
• Queens County
• Richmond County

Long Island

• Nassau County
• Suffolk County

New Jersey

• Bergen County
• Essex County
• Hudson County
• Hunterdon County
• Mercer County
• Middlesex County
• Monmouth County
• Morris County
• Passaic County
• Somerset County
• Sussex County
• Union County
• Warren County

New York Hudson Valley

• Dutchess County
• Greene County
• Orange County
• Putnam County
• Rockland County
• Sullivan County
• Ulster County
• Westchester County

References

1. ^ National ALS Association website
2. ^ ALS Association Greater New York Chapter website
3. ^ ALS Association Greater New York Chapter website
4. ^ ALS Association Greater New York Chapter website